Bill Calls for Lyme Disease Treatment Protocol, More Education

A bill in the state House would endorse long-term antibiotic treatment for Lyme disease sufferers and calls on the state to ramp up education on the disease.   

In 2005, the Pennsylvania Medical Society (PAMED) House of Delegates passed a resolution to oppose any legislation that attempts to define an acceptable standard of treatment for a specific disease.

PAMED cannot offer its support to treatments, such as the long-term antibiotic treatment of Lyme disease, that have not been endorsed by the Centers for Disease Control and Prevention, the National Institutes of Health, or the Infectious Disease Society of America.

“Unfortunately, research on this type of treatment is not proven and the overwhelming consensus of the medical community does not agree with it,” said John Goldman, MD, in his testimony to the House of Representatives Human Services Committee on Aug. 30, 2011.

“Ironically, more and more physicians are significantly curbing the unnecessary use of antibiotics given the serious and growing problem of antimicrobial resistance.”
 
PAMED does support a component of the bill that would increase education on the prevention, diagnosis, and treatment of Lyme disease with the assistance of health care provider professional associations, such as PAMED.

House Bill 272 also calls for creation of a task force to investigate and make recommendations on the prevention of Lyme disease, raising awareness about the long-term effects of its misdiagnosis, and the development of a program to inform and educate the public about the disease. Though PAMED supports the creation of such a task force, it has concerns with its proposed composition.

“Let’s not put a wedge between patients and physicians through legislation encouraging medical procedures that are scientifically unproven,” concluded Dr. Goldman. “Physicians need to act in the best interest of their patients without this kind of statutory guidance.”

Add Your Comments


The Pennsylvania Medical Society encourages lively debate, but please behave courteously and responsibly. Comments that include profanity, personal attacks (including language that could potentially identify an individual), or any other inappropriate, offensive, or illegal material will be removed. For more information, please see our Terms of Use. We do not answer legal questions on line. Members seeking general information about laws and regulations affecting medical practice may call our member resource line, (800) 228-7823.

Display name as (optional):

Comments (max 2000 characters):




Comments: 7


When will this disease be treated as seriously as it should. There are so many people suffering....I have been on medication for four years and am so much better than I was. People take long term meds for all kinds of diseases....the facts about this disease are very distorted. State by state we will win this battle!

anonymous at 3/8/2012 3:41:36 PM


I am shocked at the misinformation that exists in the Lyme's discussion. First of all LD is not only transmitted by ticks, by also by spiders, scorpions and some biting insects. I know this from personal experience of being bitten by a spider and contracting LD. The second misconception is that the AMA protocol of 3 weeks of doxy or 1 month of rocephin for neurolymes is sufficient. Again from personal experience I was treated 4 seperate times from well meaning but alas poorly educated MDs. After every tx. my LD returned within 3 weeks. Now if tx plans were determined by the AMA, CDC, NIH I would have been diagnosed with post lyme or chronic lyme. The fact of the matter is that Bor. Burg (BB) is vulnerable in its growth stage. It is also fact that BB exists in several forms within the body and has the ability to change itself depending on the environment so that it can avoid detection by the body's immune system. It therefore becomes necessary to outlast BB by dosing a patient long enough to allow BB to cycle through its complete life cycle. Failure to do this will show up in three weeks with a return of LD. This happened several times to me. It turns out that I had neurolymes and ended up on IV rocephin for several months. I have done extremely well and have very little lasting effects. Prior to the parental rocephin I had memory loss, transient speech difficulties, emotional extremes, intense fatigue, flu symptoms, knee pain and muscle weakness mainly in the quads. Now what am I to believe-that my recovery was somehow imagined or that the approved protocols don't work? My fellow doctors need to consider the possibility that they are completely wrong on this because there are many people who are sentenced to a lifetime of misery because their PCP is more concerned about the possibility of being sanctioned by their peers instead of the possibility that the protocol failed.

Dr. H at 3/7/2012 10:03:47 PM


Please help those if us who are sick, if long term meds don't work, why are people successfully treated? I am in my third year of treatment, and I find it unbelievable that in this day and age we have to fight so hard for treatment, please look at the other states who have passed such bills, I guess we have to fight to survive.... One state at a time! It is sad that we need to do it this way, and that the CDC and AMA don't believe or listen to the people who are sick. We demand change!

anonymous at 1/18/2012 10:37:04 AM


Yes, Physicians need to act in the best interest of their patients. Ticks often go unnoticed, they can spread several diseases and a rash may not always be present..In my case an oval rash was present but my doctor sent me home with a lotion. As a result the rash expanded and then I developed 2 more rounded rashes on my legs. My treatment was delayed and inadequate because my MD and another physician had no clue what an EM(lyme rash) looks like. There is a lot of confusion, misinformation and controversy about Lyme disease. The most important consideration should always be the best interest of the patient.Lets all work together to provide the best care possible. Thank you,

anonymous at 12/7/2011 9:40:18 AM


obviously the pa medical society is clueless about lyme disease. my daughter has a friend who was seriously ill with lyme disease and was in the service in iraq. he was treated for six months in the john hopkins hospital and his treatment was sucessful. the pa med soc needs to learn about lyme disease from the doctors who are in the armed services. long term treatment is desperately needed for lyme disease! my grandson has lyme disease and has had it for at least 8 years and thank goodness he is in another state and is getting treatment with daily treatment with antibiotics thru a port in his chest. i highly recommend the pa med society go to the following website-- autoimmunityresearch.org/lyme-disease/ it is

anonymous at 9/22/2011 5:36:28 PM


Pittsburgh Doctors need to be educated!

anonymous at 9/6/2011 10:04:20 PM


If you were sick you would understand, but you are not!! Leave the decision making up to the people who are sick, not those who know nothing or understand nothing!!You can agree with your textbooks all you want....does not make it so!Why don't you actually listen to people who have suffered and have gotten better? It's like having AIDS in 1960.....good luck to you, because those who make the decisions don't know a thing!

anonymous at 9/4/2011 8:25:50 AM

Last Updated: 8/30/2011
From: 
Email:  
To: 
Email:  
Subject: 
Message: